The futility of genomic counseling: essential role of electronic health records (2009)
Abstract Technological advances over the past several years have dramatically reduced the cost of whole-genome sequencing. At the same time, understanding of the functional significance of genetic...
McGuire, Amy L, Majumder, Mary
Abstract The Genetic Information Nondiscrimination Act of 2008 (GINA) was recently enacted in the United States. Its supporters have applauded the passage of GINA, and they hope that it will...
Research Ethics Recommendations for Whole-Genome Research: Consensus Statement (2008)
Timothy Caulfield, Amy L. McGuire, Mildred Cho, Janet A. Buchanan, Michael M. Burgess, Ursula Danilczyk, ...
Ethical, legal, and social considerations in conducting the Human Microbiome Project (2008)
McGuire, Amy L., Colgrove, James, Whitney, Simon N., Diaz, Christina M., Bustillos, Daniel, Versalovic, James
Operationalizing Professionalism: A Course in Ethical Decision Making (2007)
McGuire, Amy L., McCullough, Laurence B., Brody, Baruch A.
All U.S. medical schools require some medical ethics education and must now ensure that their graduates, residents, and faculty exhibit competence in the area of professionalism and professional...
Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
Caulfield, Timothy, McGuire, Amy L, Cho, Mildred, Buchanan, Janet A, Burgess, Michael M, Danilczyk, Ursula, ...
Interest in whole-genome research has grown substantially over the past few months. This article explores the challenging ethics issues associated with this work.
Principal Investigator Views of the IRB System
Whitney, Simon N., Alcser, Kirsten, Schneider, Carl E., McCullough, Laurence B., McGuire, Amy L., Volk, Robert J.
We undertook a qualitative e-mail survey of federally-funded principal investigators of their views of the US human subjects protection system, intended to identify the range of investigator...
McGuire, Amy L, Majumder, Mary Anderlik
The Genetic Information Nondiscrimination Act of 2008 (GINA) was recently enacted in the United States. Its supporters have applauded the passage of GINA, and they hope that it will alleviate public...
The futility of genomic counseling: essential role of electronic health records
Technological advances over the past several years have dramatically reduced the cost of whole-genome sequencing. At the same time, understanding of the functional significance of genetic variation...