Who visits mobile UK services providing cancer information and support in the community? (2009)
Foster, C, Scott, I, Addington-Hall, J
Who visits mobile UK services providing cancer information and support in the community?People can access a variety of sources of information and support when they have questions about cancer...
Supporting lay carers in end of life care: current gaps and future priorities (2009)
Grande, G., Stajduhar, K, Aoun, Samar, Toye, Christine, Funk, L, Addington-Hall, J, ...
Informal carers are central to the achievement of end of life care and death at home andto policy aims of enabling patient choice towards end of life. They provide a substantial, yet hidden...
Supporting lay carers in end of life care: current gaps and future priorities (2009)
Grande, G., Stajduhar, K., Aoun, Samar, Toye, Christine, Funk, L., Addington-Hall, J., ...
Informal carers are central to the achievement of end of life care and death at home and to policy aims of enabling patient choice towards end of life. They provide a substantial, yet hidden...
Population-based study of dying in hospital in six European countries (2008)
Cohen, J., Bilsen, J., Addington-Hall, J., Löfmark, R., Miccinesi, G., Kaasa, S., ...
This study examined the proportion of deaths taking place in hospitals in six European countries in relation to demographic, epidemiologic and healthcare factors. Retrospective analyses were...
Moffat, J, Foster, C, Fenlon, D, Addington-Hall, J
No abstract available.
Moffat, J., Foster, C., Fenlon, D., Addington-Hall, J.
Tens of thousands of women are diagnosed with breast cancer each year in the UK. Because the risk of developing the disease increases with age, more than one-third of cases are diagnosed in women...
Brown, J.B., Addington-Hall, J.
Background: There is little known about how people live or manage coping with motor neurone disease or amyotrophic lateral sclerosis, (MND/ALS) which is essential knowledge for developing approaches...
Palliative care in stroke: a critical review of the literature (2007)
Stevens, T., Payne, S.A., Burton, C., Addington-Hall, J., Jones, A.
The aim of this literature review was to identify the palliative care needs of stroke patients. Stroke results in high levels of mortality and morbidity, yet very little is known about the nature and...
Burt, J., Shipman, C., White, P., Addington-Hall, J.
Objectives: To explore general practitioners’ (GPs) current involvement in and attitudes towards the provision of palliative care in primary care. Methods: Postal survey of 356 London-based GPs...
Aspinal, F., Hughes, R., Dunckley, M., Addington-Hall, J.
Background: Identifying the most important issues for palliative care patients and their families, and assessing whether services address these appropriately is important. Little is known about the...
Aspinal, F., Hughes, R., Dunckley, M., Addington-Hall, J.
Background: Identifying the most important issues for palliative care patients and their families, and assessing whether services address these appropriately is important. Little is known about the...
The effect of noninvasive ventilation on ALS patients and their caregivers (2006)
Mustfa, N., Walsh, E., Bryant, V., Lyall, R.A., Addington-Hall, J., Goldstein, L.H., ...
Background: Noninvasive ventilation (NIV) reduces mortality and improves some aspects of quality of life (QoL) in ALS. However, concerns remain that progressive disability may negate these benefits...
Elkington, H., White, P., Addington-Hall, J., Higgs, R., Edmonds, P.
Chronic obstructive pulmonary disease (COPD) causes almost as many deaths as lung cancer, yet evidence about the impact of COPD in the latter stages of illness is limited. We assessed the healthcare...
Palliative care services in England: A survey of district nurses’ views (2005)
Shipman, C., Addington-Hall, J., Richardson, A., Burt, J., Ream, E., Beynon, T.
Good access to health and social services is essential to enable palliative care patients to remain and die at home. This article reports on a survey of perceptions of availability of such services...
Palliative care services in England: a survey of district nurses' views (2005)
Shipman, C., Addington-Hall, J., Richardson, A., Burt, J., Ream, E., Beynon, T.
Good access to health and social services is essential to enable palliative care patients to remain and die at home. This article reports on a survey of perceptions of availability of such services...
Catt, S., Blanchard, M., Addington-Hall, J., Zis, M., Blizard, R., King, M.
Objectives: To develop an end-of-life attitudes questionnaire for use in a large community-based sample of older people. Design: Nominal groups and standardization of questions. Participants:...
Best practices in research methods: palliative care research in practice (2005)
From an initial focus on the care of people in the last weeks or days of life, the principles and practice of palliative care have been increasingly recognized as beneficial for people earlier in...
A research study to identify facilitators and barriers to outcome measure implementation (2005)
Dunckley, M., Aspinal, F., Addington-Hall, J., Hughes, R., Higginson, I.
Aim: To identify facilitators and barriers to implementing outcome measures. Methods: An action-research approach within a hospice and nursing home was used. Staff took part in semistructured...
Palliative care: Perspectives on caring for dying people in London (2005)
Burt, J., Shipman, C., Addington-Hall, J., White, P.
Palliative care – care for people in their final stages of life – is gaining increasing recognition, but for it to be extended to all communities, primary care trusts (PCTs) need to be able to...
Hughes, R., Saleem, T., Addington-Hall, J.
Aim: To assess the cultural acceptability and appropriateness of an English end-of-life survey questionnaire translated into Bengali for use in east London. Study design: Group discussions with...
Attitudes of Danish doctors and nurses to palliative and terminal care (2005)
Vejlgaard, T., Addington-Hall, J.
Background: The WHO definitions of palliative care have been adopted in Denmark and implemented in The National Guidelines from 1999, but service developments have been very slow and not according to...
Patient descriptions of breathlessness in heart failure (2005)
Edmonds, P.M., Rogers, A., Addington-Hall, J., McCoy, A., Coats, A.J.S., Gibbs, J.S.R.
Objective: To explore patient experience of breathlessness in heart failure. Methods: Semi-structured interviews were undertaken with 27 patients with chronic heart failure and were analysed using a...
Older adult’s attitudes to death, palliative treatment and hospice care (2005)
Catt, S., Blanchard, M., Addington-Hall, J., Zis, M., Blizard, R., King, M.
Background: Cancer patients who receive care from specialist palliative care services in the UK are younger than those who do not receive this care. This may be explained by age-related differences...
Care of the dying stroke patient in the acute setting (2005)
Rogers, A., Addington-Hall, J.
Stroke is the third most common cause of death in England and Wales, accounting for 11% of all deaths. Predictors of early mortality following stroke have been known for over a century and include a...
Extending palliative care to chronic conditions (2005)
Since its inception in the 1960s, hospice care has been primarily focused on the care of terminally ill cancer patients. The lack of effective remedies for pain and other symptoms, poor communication...
Aspinal, F., Hughes, R., Dunckley, M., Addington-Hall, J.
Background: Identifying the most important issues for palliative care patients and their families, and assessing whether services address these appropriately is important. Little is known about the...
Bailey, C., Corner, J., Addington-Hall, J., Kumar, D., Haviland, J.
Age and ageing are an important part of the context within which the care and treatment of people with cancer is provided. More information is needed about the effects of cancer treatment on the...
Assessing palliative care outcomes for people with motor neurone disease living at home (2004)
Hughes, R.A., Aspinal, F., Higginson, I.J., Addington-Hall, J., Dunckley, M., Faull, C., ...
A number of palliative care outcome measures are used to facilitate the provision of palliative care. This short article reports the use of one palliative care outcome measure, the Palliative care...
The last year of life of COPD: a qualitative study of symptoms and services (2004)
Elkington, H., White, P., Addington-Hall, J., Higgs, R., Pettinari, C.
Introduction: To assess the symptoms experienced and their impact on patients’ lives in the last year of life of COPD, and to assess patients’ access to and contact with health services. Method:...
Gysels, M., Hughes, R., Aspinal, F., Addington-Hall, J., Higginson, I.
Objective. To investigate the opinions of stakeholders (service commissioners and providers) on how performance data should be presented, in order to develop effective feedback methods to facilitate...
Bailey, C., Corner, J., Addington-Hall, J., Kumar, D., Nelson, M., Haviland, J.
The aim of the study was to investigate the role of age and multidimensional functional status in treatment decisions in older patients with colorectal cancer. Three hundred and thirty-seven patients...
Using satisfaction to measure the quality of palliative care: a review of the literature (2003)
Aspinal, F., Addington-Hall, J., Hughes, R., Higginson, I.J.
Background. The advent of clinical governance in British health policy has placed increased demands on health care providers and practitioners to ascertain the quality of their services. Traditional...
Using satisfaction to measure the quality of palliative care: a review of the literature (2003)
Aspinal, F., Addington-Hall, J., Hughes, R., Higginson, I.J.
Background. The advent of clinical governance in British health policy has placed increased demands on health care providers and practitioners to ascertain the quality of their services. Traditional...
Depression in palliative care: a systematic review. Part 2. Treatment (2002)
Ly, K.L., Chidgey, J., Addington-Hall, J., Hotopf, M.
Objective: To summarize available literature containing data on the treatment of depression in palliative care patients. Methods: A systematic review was conducted using extensive electronic...
Depression in advanced disease: a systematic review Part 1. Prevalence and case finding (2002)
Hotopf, M., Chidgey, J., Lan Ly, L., Addington-Hall, J.
Objective: To identify all literature regarding depression in patients with advanced cancer and among mixed hospice populations, and to summarise the prevalence of depression according to different...
Research sensitivities to palliative care patients (2002)
This paper considers the methodological challenges of researching the health care experiences of palliative care patients and their families. Difficulties in defining a ‘palliative care patient’...
After-death interviews with surrogates/bereaved family members: some issues of validity (2001)
Addington-Hall, J., McPherson, C.
After-death interviews with bereaved respondents are an important tool in the repertoire of researchers evaluating the quality of end-of-life care or investigating the experiences of people at the...
Edmonds, P., Karlsen, S., Khan, S., Addington-Hall, J.
This paper reports on data from the Regional Study of Care for the Dying, conducted in 1990, and compares symptoms, care and service utilization for patients with chronic lung diseases (CLD) and lung...
Who should measure Quality of Life? (2001)
Summary points Some patients cannot complete quality of life measures because they have cognitive impairments, communication deficits, are in severe distress, or because the measures are too...
Ward, E., King, M., Lloyd, M., Bower, P., Sibbald, B., Farrelly, S., ...
Objective: To compare the clinical effectiveness of general practitioner care and two general practice based psychological therapies for depressed patients. Design: Prospective, controlled trial with...
Telephone versus postal surveys of general practitioners: methodological considerations.
Sibbald, B, Addington-Hall, J, Brenneman, D, Freeling, P
BACKGROUND. High response rates to surveys help to maintain the representativeness of the sample. AIM. In the course of a wider investigation into counselling services within general practice it was...
Sibbald, B, Addington-Hall, J, Brenneman, D, Freeling, P
BACKGROUND: Counselling services are now widespread within general practice. Although the cost-effectiveness of such services has yet to be fully investigated, benefits could include a reduction in...
Shipman, C, Addington-Hall, J, Barclay, S, Briggs, J, Cox, I, Daniels, L, ...
The complex needs of palliative care patients require an informed, expert, and swift response from out-of-hours general medical services, particularly if hospital admission is to be avoided. Few...
Counsellors in English and Welsh general practices: their nature and distribution.
Sibbald, B, Addington-Hall, J, Brenneman, D, Freeling, P
OBJECTIVE--To establish the prevalence of counselling services in English and Welsh general practices and factors associated with their distribution; to describe qualifications, working arrangements,...
Distribution of mental health professionals working on site in English and Welsh general practices.
Kendrick, T, Sibbald, B, Addington-Hall, J, Brenneman, D, Freeling, P
OBJECTIVE--To describe the nature and distribution of mental health professionals working on site in general practices. DESIGN--Postal questionnaire and telephone interview survey. SETTING--English...
Telephone versus postal surveys of general practitioners: methodological considerations.
Sibbald, B, Addington-Hall, J, Brenneman, D, Freeling, P
BACKGROUND. High response rates to surveys help to maintain the representativeness of the sample. AIM. In the course of a wider investigation into counselling services within general practice it was...
Sibbald, B, Addington-Hall, J, Brenneman, D, Freeling, P
BACKGROUND: Counselling services are now widespread within general practice. Although the cost-effectiveness of such services has yet to be fully investigated, benefits could include a reduction in...
Shipman, C, Addington-Hall, J, Barclay, S, Briggs, J, Cox, I, Daniels, L, ...
The complex needs of palliative care patients require an informed, expert, and swift response from out-of-hours general medical services, particularly if hospital admission is to be avoided. Few...
Counsellors in English and Welsh general practices: their nature and distribution.
Sibbald, B, Addington-Hall, J, Brenneman, D, Freeling, P
OBJECTIVE--To establish the prevalence of counselling services in English and Welsh general practices and factors associated with their distribution; to describe qualifications, working arrangements,...
Distribution of mental health professionals working on site in English and Welsh general practices.
Kendrick, T, Sibbald, B, Addington-Hall, J, Brenneman, D, Freeling, P
OBJECTIVE--To describe the nature and distribution of mental health professionals working on site in general practices. DESIGN--Postal questionnaire and telephone interview survey. SETTING--English...
Addington-Hall, J., Walker, L., Jones, C., Karlsen, S., McCarthy, M.
STUDY OBJECTIVES: To develop a short form of an interview schedule used successfully in previous national surveys of care for the dying, and to investigate the effect of administering it by post on...
The role of counsellors in general practice. A qualitative study.
Sibbald, B., Addington-Hall, J., Brenneman, D., Obe, P. F.
Counselling services in general practice are now widespread but little is known about their nature or role. We therefore carried out in-depth telephone interviews with a representative sample of 72...